12th May: Mass Observation works with the Motor Neurone Disease Association
- Published: Tuesday, 16 April 2019 15:44
The Mass Observation Archive is delighted to be working the Motor Neurone Disease Association on the 12th May project this year.
Every day six people are diagnosed with motor neurone disease (MND) in England, Wales and Northern Ireland. Another six people die.
The Motor Neurone Disease Association works to support people affected by the disease, coordinates care, and campaigns with and on behalf of those people.
In the Association’s 40th anniversary year people with the disease, their families, carers, and health and social care professionals have been invited to join the thousands of people from across the country who contribute their 12 May diaries to the Mass Observation Archive.
This opportunity has given people living with MND, a disease which robs them of the ability to move, eat, talk and ultimately to breathe, the chance to share details of their daily life with generations to come.
Some will write their diaries by hand, others may record them for transcription using technology and their synthesised voice, others will type them using eyegaze technology - manipulating a cursor around a screen using their eyes.
With scientists and researchers striving for treatments and a cure for MND, the hope is that the stories recorded today will give our descendants an insight into a disease which no longer exists outside of medical text books.
For information visit www.mndassociation.org.